FTD – World Awareness Week 2015

As we round off this week, I have been gratified to see the growing support that seems to be occurring all over the world. It seems that our voices are beginning to be heard and advocates are popping up all over the place! Hooray!

Of course our biggest advocate and voice is that of the Association for Frontotemporal Degeneration -the AFTD. I was privileged this week to talk to some of the wonderful people there and hope to be working with them very soon.

Amidst all the clamor of publicity and as much as we all want the word to be out there, there is great competition. Competition from other, equally devastating conditions to those who are forced to endure them. We cannot forget those causes either. But those of us who have been touched – no, assaulted by FTD know that we will not rest, despite the compassion we have for everything else going on, until treatment and eventually a cure is found.

Personally, I want to thank my local peeps for organizing two Food For Thought events in the Phoenix area – Cheryl Johnson and Kathy Ritchie, who both lost beautiful, bright, intelligent loved ones to FTD. These two women are carrying on their fight with love, honor and loyalty and I salute them both.

The last word of this momentous week goes to those people for whom the fight is personal. Those people who are doing everything within their power to raise awareness, provide relief and bring some light into the dark days for their fellow FTD’ers. This video was made by the AFTD to demonstrate the wonderful work going on by those people.

Thank you for all your support and generosity this week and always.