I have written on many topics in the last few months. Some poignant, some funny, some expressing anger.
So now, I would like to know – what kind of things would you like to read about regarding my experience with FTD?
Over the five years that my husband and I spent tackling this heinous disease, we went through many trials and tribulations. We experienced what it is like to move through a broken healthcare system. We saw love and compassion from complete strangers, we saw greed and indifference from others.
Obviously, my experience with Frontotemporal Degeneration was singular and unique. Yours will most certainly not be exactly the same. But what I -we- saw, did and had happen to us can hopefully paint a picture for you. You could perhaps, use it to help you decide on which path to take through this disease.
Some things that come to mind are practical issues-food, incontinence and sleeping. Or perhaps end-of-life-issues, about which I have some quite strong views and suggestions. Personally, the biggest challenges for me were not of a practical nature, more the emotional stranglings that take place when your spouse is slowly being dragged from you.
Anyway, please feel free to suggest whatever is on your mind. Have a wonderful weekend –
- New therapeutic target identified for ALS and frontotemporal degeneration (eurekalert.org)
- A Widow….and Married? (lynnbowerdementia.wordpress.com)
- New therapeutic target identified for ALS and frontotemporal degeneration (hispanicbusiness.com)